The power of people against cure
Create awareness support
families and find Cure
We help Fibrodysplasia Ossificans Progressiva Patients in India
Stoneman disease
Help make a better world free from
Fibrodysplasia Ossificans Progressiva
What Is FOP?
Medical Consultation
FOP Trust India offers specialized medical consultations for FOP patients, providing tailored care, effective treatment planning, and resources to manage this rare condition.
Mobility Aids
FOP Trust India offers custom wheelchairs and mobility aids, enhancing independence and quality of life for FOP patients by facilitating easier navigation on a daily basis.
Home Comforts
FOP Trust India enhances home comfort for FOP patients with specialized recliners and beds, tailored to ensure maximum comfort and support in their living environments.
House Modification
FOP Trust India offers house modifications to accommodate specialized recliners, beds, & mobility aids, ensuring a supportive and accessible living environment for FOP patients.
DO You Know anyone with FOP?
FOP, a rare genetic disorder, turns muscles and connective tissues into bone, restricting mobility.
It’s often marked by big toe malformations. Despite mental wellness, FOP patients face physical immobility.
No cure exists yet. Refer potential cases to us for a chance to win ₹1000.
Clinical Characteristics of FOP:
FOP Trust connects all India FOP Patients with best available doctors & hospitals.
FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.
Latest non-government organizations news and
updates, special reports, videos, and more
November 24, 2025
This week focused on prevention of flare-ups and fast management of new swelling cases across multiple states. 🔹 Mayeshree from Manipur had a follow-up after her pamidronate therapy three months ago. While she is doing well, Dr Vrisha advised a second pamidronate cycle as precaution to prevent possible flare-ups.Instructions and medication protocol were sent to […]
November 24, 2025
This week showcased the power of preventive care through the story of 10-year-old Mayeshree from Manipur. After receiving pamidronate infusion three months ago, her family attended a review consultation as planned. Even though she had no pain or swelling, Dr Vrisha advised a second treatment cycle to prevent future flare-ups before they begin. Blood calcium […]
November 24, 2025
This week, Selva Kumar played a major role in ensuring continuity of treatment for families in remote and distant locations. His responsibilities included:✔️ Arranging online consultations✔️ Sharing treatment protocols with local hospitals✔️ Coordinating pamidronate access for families outside Tamil Nadu✔️ Continuous communication with Amara Hospital’s medical team A major highlight was helping Arzaan from Nagpur […]