The power of people against cure
Create awareness support
families and find Cure
We help Fibrodysplasia Ossificans Progressiva Patients in India
Stoneman disease
Help make a better world free from
Fibrodysplasia Ossificans Progressiva
What Is FOP?
Medical Consultation
FOP Trust India offers specialized medical consultations for FOP patients, providing tailored care, effective treatment planning, and resources to manage this rare condition.
Mobility Aids
FOP Trust India offers custom wheelchairs and mobility aids, enhancing independence and quality of life for FOP patients by facilitating easier navigation on a daily basis.
Home Comforts
FOP Trust India enhances home comfort for FOP patients with specialized recliners and beds, tailored to ensure maximum comfort and support in their living environments.
House Modification
FOP Trust India offers house modifications to accommodate specialized recliners, beds, & mobility aids, ensuring a supportive and accessible living environment for FOP patients.
DO You Know anyone with FOP?
FOP, a rare genetic disorder, turns muscles and connective tissues into bone, restricting mobility.
It’s often marked by big toe malformations. Despite mental wellness, FOP patients face physical immobility.
No cure exists yet. Refer potential cases to us for a chance to win ₹1000.
Clinical Characteristics of FOP:
FOP Trust connects all India FOP Patients with best available doctors & hospitals.
FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.
Latest non-government organizations news and
updates, special reports, videos, and more
July 10, 2024
CRISPR-Cas9 is widely used to edit the genome by studying genes of interest and modifying disease-associated genes. However, this process is associated with side effects including unwanted mutations and toxicity. Therefore, a new technology that reduces these side effects is needed to improve its usefulness in industry and medicine. Now, researchers at Kyushu University in […]
July 5, 2024
DISEASE OVERVIEW Fibrodysplasia ossificans progressiva (FOP) is an extremely rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present (heterotopic ossification), such as the ligaments, tendons and skeletal muscles. Specifically, this disorder causes the body’s skeletal muscles and soft connective tissues to […]
June 21, 2024
The Fibrodysplasia Ossificans Progressiva Pipeline report embraces in-depth commercial and clinical assessment of the pipeline products from the pre-clinical developmental phase to the marketed phase. The report also covers a detailed description of the drug, including the mechanism of action of the drug, clinical studies, NDA approvals (if any), and product development activities comprising the […]