+91 9740998032 info@foptrust.org
Welcome to


We help Fibrodysplasia Ossificans Progressiva Patients in India

FOP turns children into human statues.

Get Help

A healthy mind locked inside a frozen body. A cure is near, but we need to keep research funded to perfect it in time for those with FOP. Your role is crucial in preventing one of the world’s most debilitating conditions – forever! Hope rests with people like you, people who care.

What is FOP ?

Fibrodysplasia ossificans progressiva (FOP) is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone, forming bone outside the skeleton that constrains movement.

FOP Symptoms

FOP becomes apparent early in childhood. Infants are usually born with short, malformed big toes. Bone and joint problems make it hard for babies to learn to crawl. About half of people with FOP also have malformed thumbs.

FOP Treatment

Unfortunately, there is no effective treatment for fibrodysplasia ossificans progressiva (FOP). Surgery is not an option for removing the excess bones because surgery often results in more bone formation. And these new bones don’t disappear on their own.
You are not alone

FOP Trust connects all India FOP Patients with best available doctors & hospitals.

FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.

FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.

A special thanks to all our supporters

FOP Trust are very grateful to its supporters who help us stand united and fight FOP.


+91 974 099 8032




Harlur Road, HSR Layout,
Bengaluru - 560102
Karnataka, India