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We help Fibrodysplasia Ossificans Progressiva Patients in India
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Stoneman disease

Help make a better world free from
Fibrodysplasia Ossificans Progressiva

What Is FOP?

Fibrodysplasia - Tissue thickening or scarring.
Ossificants - Hardening process turning into bone.
Progressiva - Continual development, worsening over time.

Individual with FOP appear normal at birth except for
characteristic of malformation of great (Big) toes.

FOP is a condition where muscles and tendons progressively
turn into bone a er birth, restricting movement. The disease progression rate varies and flare-ups, characterized by sudden
swelling and inflammation, occur unpredictably.

What FOP Trust Offers?

We must act, continue to act, and act together
We provide comprehensive support for individuals with FOP, including:
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Medical Consultation

We save and protect an lives in times of crisis.

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Mobility Aids

We save and protect an lives in times of crisis.

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Home Comforts

We save and protect an lives in times of crisis.

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House Modification

We save and protect an lives in times of crisis.

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DO You Know anyone with FOP?

FOP, a rare genetic disorder, turns muscles and connective tissues into bone, restricting mobility.
It’s often marked by big toe malformations. Despite mental wellness, FOP patients face physical immobility.
No cure exists yet. Refer potential cases to us for a chance to win ₹1000.

Clinical Characteristics of FOP:

Malformation of the great toes is visible at birth.

Rogue bone growth progressively restricts movement.

No ethnic, racial, or gender patterns.

Rare, progressive genetic disorder that has an estimated prevalence of 0.88 per 1 million, or approximately a prevalence of 1 in 1 million.

FOP Trust connects all India FOP Patients with best available doctors & hospitals.

FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.
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