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Fibrodysplasia Ossificans Progressiva

What Is FOP?

Fibrodysplasia - Tissue thickening or scarring.
Ossificants - Hardening process turning into bone.
Progressiva - Continual development, worsening over time.

Individual with FOP appear normal at birth except for
characteristic of malformation of great (Big) toes.

FOP is a condition where muscles and tendons progressively
turn into bone a er birth, restricting movement. The disease progression rate varies and flare-ups, characterized by sudden
swelling and inflammation, occur unpredictably.

What FOP Trust Offers?

We provide comprehensive support for individuals with FOP, including:
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Medical Consultation

FOP Trust India offers specialized medical consultations for FOP patients, providing tailored care, effective treatment planning, and resources to manage this rare condition.

Mobility Aids

FOP Trust India offers custom wheelchairs and mobility aids, enhancing independence and quality of life for FOP patients by facilitating easier navigation on a daily basis.

Home Comforts

FOP Trust India enhances home comfort for FOP patients with specialized recliners and beds, tailored to ensure maximum comfort and support in their living environments.

House Modification

FOP Trust India offers house modifications to accommodate specialized recliners, beds, & mobility aids, ensuring a supportive and accessible living environment for FOP patients.

DO You Know anyone with FOP?

FOP, a rare genetic disorder, turns muscles and connective tissues into bone, restricting mobility.
It’s often marked by big toe malformations. Despite mental wellness, FOP patients face physical immobility.
No cure exists yet. Refer potential cases to us for a chance to win ₹1000.

Clinical Characteristics of FOP:

Malformation of the great toes is visible at birth.

Rogue bone growth progressively restricts movement.

No ethnic, racial, or gender patterns.

Rare, progressive genetic disorder that has an estimated prevalence of 0.88 per 1 million, or approximately a prevalence of 1 in 1 million.

FOP Trust connects all India FOP Patients with best available doctors & hospitals.

FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.

Latest non-government organizations news and
updates, special reports, videos, and more

Fibrodysplasia Ossificans Progressiva
Fibrodysplasia Ossificans Progressiva Pipeline Report, 2024 Updates : In-Depth Analysis Into the Clinical Trials, Latest FDA, EMA, and PMDA Approvals, Emerging Drugs, Growth Prospects and Companies

The Fibrodysplasia Ossificans Progressiva Pipeline report embraces in-depth commercial and clinical assessment of the pipeline products from the pre-clinical developmental phase to the marketed phase. The report also covers a detailed description of the drug, including the mechanism of action of the drug, clinical studies, NDA approvals (if any), and product development activities comprising the […]

Fibrodysplasia Ossificans Progressiva
Successful Preimplantation Genetic Testing for Fibrodysplasia Ossificans Progressiva: a Case Report

Purpose of the study Fibrodysplasia ossificans progressiva (FOP) is a rare autosomal dominant condition that leads to significant disability and morbidity, characterised by the formation of heterotopic hard tissues within connective tissues. The condition has an incidence of approximately one per two million people worldwide. There is no known single effective treatment available for FOP. […]

Fibrodysplasia Ossificans Progressiva
Actionable Disease Insights from Bedside-to-Bench Investigation in Fibrodysplasia Ossificans Progressiva

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder of extraskeletal endochondral bone formation. Heterozygous missense gain-of-function mutations in the activin receptor A type I (ACVR1) gene are present in all individuals with sporadic or familial FOP. ACVR1R206H mutations confer increased sensitivity of this bone morphogenetic protein (BMP) family receptor to activation by BMP ligands and […]

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