The power of people against cure
Create awareness support
families and find Cure
We help Fibrodysplasia Ossificans Progressiva Patients in India
Stoneman disease
Help make a better world free from
Fibrodysplasia Ossificans Progressiva
What Is FOP?
Medical Consultation
FOP Trust India offers specialized medical consultations for FOP patients, providing tailored care, effective treatment planning, and resources to manage this rare condition.
Mobility Aids
FOP Trust India offers custom wheelchairs and mobility aids, enhancing independence and quality of life for FOP patients by facilitating easier navigation on a daily basis.
Home Comforts
FOP Trust India enhances home comfort for FOP patients with specialized recliners and beds, tailored to ensure maximum comfort and support in their living environments.
House Modification
FOP Trust India offers house modifications to accommodate specialized recliners, beds, & mobility aids, ensuring a supportive and accessible living environment for FOP patients.
DO You Know anyone with FOP?
FOP, a rare genetic disorder, turns muscles and connective tissues into bone, restricting mobility.
It’s often marked by big toe malformations. Despite mental wellness, FOP patients face physical immobility.
No cure exists yet. Refer potential cases to us for a chance to win ₹1000.
Clinical Characteristics of FOP:
FOP Trust connects all India FOP Patients with best available doctors & hospitals.
FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.
Latest non-government organizations news and
updates, special reports, videos, and more
November 6, 2025
This week, FOP Trust India built on the IFOPA vision of connecting patients to care by expanding its hospital partnerships and doctor outreach. Official FOP Trust letters were handed over to: These outreach efforts ensure that doctors who encounter rare FOP symptoms can connect patients immediately to specialized resources and FOP Trust’s network. Takeaway: When […]
November 6, 2025
This week brought new flare-up cases from across India — met with equally quick action. These stories reflect the importance of constant coordination between families and FOP Trust’s clinical partners. Takeaway: Quick connection to expert care makes every flare-up manageable.Outro: Through every message and consultation, FOP Trust India ensures rare disease care never pauses. To […]
November 6, 2025
For Ivansh from Haryana, this week brought welcome relief. Following his online consultation with Dr Vrisha Madhuri at Amara Hospital, his swelling reduced significantly.His father shared, “We followed the prescribed medication exactly as advised, and the results were encouraging.” FOP Trust’s coordination ensured that his family received both medical clarity and emotional reassurance — vital […]