The power of people against cure
Create awareness support
families and find Cure
We help Fibrodysplasia Ossificans Progressiva Patients in India
Stoneman disease
Help make a better world free from
Fibrodysplasia Ossificans Progressiva
What Is FOP?
Medical Consultation
FOP Trust India offers specialized medical consultations for FOP patients, providing tailored care, effective treatment planning, and resources to manage this rare condition.
Mobility Aids
FOP Trust India offers custom wheelchairs and mobility aids, enhancing independence and quality of life for FOP patients by facilitating easier navigation on a daily basis.
Home Comforts
FOP Trust India enhances home comfort for FOP patients with specialized recliners and beds, tailored to ensure maximum comfort and support in their living environments.
House Modification
FOP Trust India offers house modifications to accommodate specialized recliners, beds, & mobility aids, ensuring a supportive and accessible living environment for FOP patients.
DO You Know anyone with FOP?
FOP, a rare genetic disorder, turns muscles and connective tissues into bone, restricting mobility.
It’s often marked by big toe malformations. Despite mental wellness, FOP patients face physical immobility.
No cure exists yet. Refer potential cases to us for a chance to win ₹1000.
Clinical Characteristics of FOP:
FOP Trust connects all India FOP Patients with best available doctors & hospitals.
FOP Trust provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP Trust raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.
Latest non-government organizations news and
updates, special reports, videos, and more
October 8, 2025
For Shraya Pokhrel from Nepal, the first online consultation with Dr. Vrisha Madhuri was a turning point. Network issues and scheduling challenges could not stop the session, where Dr. Madhuri assessed his condition, prescribed medication, and explained the FOP protocol. For his father, the consultation brought much-needed clarity. His doubts about the disease and treatment […]
October 8, 2025
September’s awareness activities highlighted the power of both partnerships and grassroots action. Pamphlets were distributed during a government health and welfare camp in Vellore City, bringing FOP knowledge directly to families who may otherwise never hear of the condition. These efforts reduce the risk of harmful procedures and promote early diagnosis. Simultaneously, partnerships with groups […]
October 8, 2025
The field team spent the week building partnerships and strengthening patient support systems. Meetings with Vellore Lions Club focused on organizing awareness programs, while discussions with Rotary Club officials explored future MoUs. Talks also began with the Reach India Foundation, signaling potential collaboration for community support. On the organizational side, the team worked on database […]