About Us

Our Vision

FOP Trust of India will strive to support & provide information to FOP patients and families across India, and increase awareness about FOP in India. To create a knowledge bank among the edical fraternity, on the symptoms, diagnosis and medical management of FOP. Also, to collaborate with other Rare disease groups to help this community of patients and families.

Our Mission

  • Help families/ patients connect with relevant doctors / hospitals and arrange for consultation / treatment /Medicine.
  • Help families/ patients with Equipment’s /beds / home modifications/ wheelchairs. Etc
  • Raise funds to help find a cure by giving grants to research organisations /universities and any other entities.
  • Collaborate with other Rare disease groups to mutually support each other to obtain Government approvals for clinical trails, medication funding , regulatory approvals
  • Create awareness about FOP via Social Media, Doctor reach out, Incorporation in Govt protocols.
  • Work to get FOP to be categorised as a rare disease and help families avail Govt assistance for treatment / management
  • Get Govt regulations to make all building / Train , bus and Air travel Disability ,friendly / wheel chair accessible.
  • Any other activities which are beneficial to the rare diseases community as a whole.

Founders of FOP TRUST

sunil kumar ladwa

An accomplished business man with 25 + years in business and involved with many NGOs, part of Road safety committees and active with Rare disease groups over the world. Passionate about finding a cure for FOP , create awareness and Help families affected with FOP.

Sunil Kumar Ladwa


sumithra ladwa

Sumithra is Director in two companies and handles HR and Finance . She took a break from a career with Tata Elixsi , where she used to handle HR and compliances. She brings with her the huge experience of handling multiple entities and streamlining their operations.

Sumithra Ladwa


Advisory Team of FOP TRUST

Selva kumar is a Community Health professional with vast experience of 35 years at Vellore Christian Medical College. He has devoted all of his life to rehabilitation & service to people with disabilities and been a Consultant & Trainer for NGO'S. Fop India Trust is proud to have him in the team to render his service towards holistic well being of Fop families

Mr. Selva Kumar

Health Professional

Mr. Krishna M V

Krishna is a Post Graduate in English Literature and HRM, respectively. Having served the Indian Air Force with distinction for 16 years, Armed Forces background definitely played a very major role in shaping as to who & what he is right now. Presently, he is employed as The Administrator of a well known educational institute in Bangalore.

Mr. Krishna M V


Panel of Doctors

Dr Vrisha Madhuri

Dr Rajesh bariker

Dr Debasis Pathi