A key step in improving care for FOP patients is ensuring that medical professionals know how to spot the signs early. FOP Trust India is taking a proactive approach by partnering with nursing and medical colleges across the country to raise rare disease awareness.
👩⚕️ Why This Matters
Many FOP cases are misdiagnosed due to lack of awareness among frontline health workers. An unnecessary biopsy or injection during a flare-up can cause permanent damage.
By training future nurses and doctors, FOP Trust India is:
- Reducing delays in diagnosis
- Preventing harmful treatments
- Building a network of rare disease-aware professionals
🏥 Awareness Programs in Action
Recent programs have been held at:
- CMC Vellore and its sister institutions
- RUHSA Community Hospital
- Karigiri and Chittoor Nursing Colleges
These sessions include:
- Lectures on identifying early FOP signs
- Distribution of pamphlets and case studies
- Hands-on engagement with patient stories and real-world scenarios
🌱 Training Today, Healing Tomorrow
Every nurse or doctor trained could be the difference between lifelong disability and early care. By sponsoring these sessions, you help build a better-informed healthcare system for rare disease patients.
