For Ivansh from Haryana, this week brought welcome relief. Following his online consultation with Dr Vrisha Madhuri at Amara Hospital, his swelling reduced significantly.His father shared, “We followed the prescribed medication exactly as advised, and the results were encouraging.” FOP Trust’s coordination ensured that his family received both medical clarity and emotional reassurance — vital […]
When Kartik Pateria from Madhya Pradesh first connected with FOP Trust, he had already faced years of misdiagnosis. With coordinated support, he received a structured online evaluation with Dr Vrisha Madhuri at Amara Hospital.Today, Kartik’s follow-up sessions help him manage mobility and flare-ups effectively. Supported by FOP Trust and Dr Caroline’s local guidance, his medication […]
Rupam Kait’s journey began when unexplained stiffness led his parents to CMC Hospital Vellore. After doctors suspected FOP, FOP Trust India quickly arranged a video consultation with Dr. Vrisha Madhuri at Amara Hospital. Rupam’s diagnosis was confirmed, and his family received medication guidance and FOP protocol education. Meanwhile, Ivansa Pradeep from Haryana had been seen […]
When Archisman from West Bengal experienced a sudden FOP flare-up, his family immediately contacted FOP Trust. Within hours, he was connected to an online consultation at Amara Hospital, where Dr. Vrisha Madhuri reviewed his condition and advised the family to coordinate with a local pediatrician for emergency care. Detailed instructions on the FOP protocol and […]
When Kartik Pateria from Madhya Pradesh began facing the challenges of Fibrodysplasia Ossificans Progressiva (FOP), his family turned to FOP Trust India for guidance.In early October, the Trust facilitated an online consultation with Dr. Vrisha Madhuri at Amara Hospital, giving Kartik and his family renewed hope. His medical details — from age at onset to […]
For Shraya Pokhrel from Nepal, the first online consultation with Dr. Vrisha Madhuri was a turning point. Network issues and scheduling challenges could not stop the session, where Dr. Madhuri assessed his condition, prescribed medication, and explained the FOP protocol. For his father, the consultation brought much-needed clarity. His doubts about the disease and treatment […]
For families living with FOP, the first consultation often feels like the most important step. This was true for Shraya Pokhrel, a child from Nepal, who recently had his first online consultation with Dr. Vrisha Madhuri at Amara Hospital. Despite challenges like network issues, a packed hospital schedule, and the complexity of Shraya’s symptoms, the […]
Sivaji, a young man from Andhra Pradesh, has been navigating the uncertainty of a suspected FOP diagnosis. His case reflects both the challenges of rare disease detection and the power of persistence in seeking answers. After developing symptoms that raised concerns, Sivaji underwent tests and X-rays. Unfortunately, his earlier reports did not reveal a clear […]
At just 10 years old, Sanskriti Gupta from Uttar Pradesh is showing remarkable strength as she learns to live with Fibrodysplasia Ossificans Progressiva (FOP). Her journey reflects the resilience of many children and families navigating the daily challenges of this rare condition. A New Flare-Up On September 8, 2025, Sanskriti developed a painful swelling in […]
Young Varsa from Madurai has been bravely navigating her FOP journey. Recently, she faced swelling in her neck, which caused pain and discomfort. Her grandfather, a strong advocate for her care, reported the situation to FOP Trust. With support from Dr. Vrisha Madhuri, Varsa received medication that eased her pain. While the swelling has not […]
