Rupam Kait’s journey began when unexplained stiffness led his parents to CMC Hospital Vellore. After doctors suspected FOP, FOP Trust India quickly arranged a video consultation with Dr. Vrisha Madhuri at Amara Hospital. Rupam’s diagnosis was confirmed, and his family received medication guidance and FOP protocol education.
Meanwhile, Ivansa Pradeep from Haryana had been seen in AIIMS Delhi but needed specialized follow-up. FOP Trust again stepped in to coordinate an online session, ensuring continuity of care and reassurance for her family.
Both families now stay connected to FOP Trust’s care network for ongoing review and flare-up support.
Takeaway: No family is alone when information flows and help arrives on time.
FOP Trust India continues to link expertise with empathy—because every FOP journey deserves a team that cares.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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