This week brought new flare-up cases from across India — met with equally quick action. These stories reflect the importance of constant coordination between families and FOP Trust’s clinical partners. Takeaway: Quick connection to expert care makes every flare-up manageable.Outro: Through every message and consultation, FOP Trust India ensures rare disease care never pauses. To […]
Focus Keyword: FOP awareness India hospitalsMeta Description: FOP Trust India strengthened awareness through doctor briefings and hospital partnerships across Tamil Nadu this week. This week’s awareness efforts were rooted in doctor collaboration and hospital referrals.By meeting senior hospital officials and delivering formal FOP referral letters, FOP Trust India continues to promote early diagnosis and standardized […]
Under Dr Vrisha Madhuri’s supervision, the week saw proactive online reviews: Payment for all consultations was facilitated by FOP Trust, ensuring no delay in patient access. Takeaway: Expert guidance and continuity of care define the FOP Trust approach. Every week’s consultation is a reminder that consistent medical access transforms long-term outcomes.To learn more, visit: https://foptrust.org/For […]
During the week, FOP Trust coordinated two new online consultations with Amara Hospital under Dr. Vrisha Madhuri. Medication guidance, the FOP protocol, and family counseling were completed the same day. Both families expressed gratitude to FOP Trust for organizing timely expert consultations. Takeaway: Early diagnosis leads to early stability.By bridging hospital networks and digital access, […]
Accurate tracking of flare-ups and mobility changes is central to managing FOP. This week, FOP Trust emphasized the importance of consistent reporting and documentation—a key part of the national FOP database. Regular updates help doctors assess disease progression and adjust care plans faster. Recent online consultations guided by Dr. Vrisha Madhuri demonstrate how personalized review […]
Patient registries have become a cornerstone of FOP research. These databases record key details about patients’ health journeys — from diagnosis and flare-ups to medication history — allowing researchers to design better trials and treatments. In India, the FOP Trust Database is updated regularly through consultations at Amara Hospital, led by Dr. Vrisha Madhuri.During the […]
This week showed the importance of both immediate treatment and long-term planning. On September 15, Sivaji from Andhra Pradesh was reviewed after new flare-up concerns. His earlier tests had not revealed clear results, but new X-rays suggested features of FOP. To ensure accuracy, Dr. Vrisha Madhuri recommended further testing and sought additional input from a […]
FOP research has made exciting strides lately. Several drugs under development show promise in slowing or preventing heterotopic bone formation (HO) and improving quality of life. Here’s what’s new: 🔬 Key Investigational Drugs ⚠️ What These Mean for Patients 🔍 Looking Ahead Research continues at a fast pace. With each trial, we gain better understanding […]
Living with Fibrodysplasia Ossificans Progressiva (FOP) often feels overwhelming for families. The disease is rare, unpredictable, and every flare-up brings fear of what might happen next. But clear, written protocols transform this uncertainty into confidence. Why Protocols Matter Families often face split-second decisions—whether to go to the hospital, which medicines to give, or how to […]
The first week of September brought important lessons about managing FOP flare-ups with safe, evidence-based care. Every consultation reinforces that managing FOP is not just about medication—it’s about making the right decisions at the right time, guided by expertise and trust. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
