Accurate tracking of flare-ups and mobility changes is central to managing FOP. This week, FOP Trust emphasized the importance of consistent reporting and documentation—a key part of the national FOP database.
Regular updates help doctors assess disease progression and adjust care plans faster. Recent online consultations guided by Dr. Vrisha Madhuri demonstrate how personalized review schedules and therapy follow-ups reduce complications and help patients maintain function longer.
Every data point counts—it turns observation into progress.
By maintaining structured medical records, FOP Trust ensures that every patient’s journey contributes to better global understanding.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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