This was a productive week on the ground as outreach efforts focused on improving awareness among doctors and expanding referral networks. 🏥 Key Outreach Activities: Selva also shared that FOP Trust may participate again in the National Orthopedic Conference, as done last year, and potentially at a Pediatric Doctors’ Conference this year—both crucial platforms for […]
Selva Kumar’s work this week focused on creating awareness among healthcare professionals: Takeaway: Expanding medical partnerships ensures every patient finds the right door to care.Outro: Fieldwork transforms awareness into access — one doctor, one meeting at a time.To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
Field officer Selva Kumar continued his rural outreach this October, traveling across Tamil Nadu to meet families, identify undiagnosed FOP cases, and connect them with expert medical care.His visits ensure that even patients in remote areas can access guidance from Amara Hospital and specialists like Dr. Vrisha Madhuri. Selva also worked closely with the Lions […]
The field team spent the week building partnerships and strengthening patient support systems. Meetings with Vellore Lions Club focused on organizing awareness programs, while discussions with Rotary Club officials explored future MoUs. Talks also began with the Reach India Foundation, signaling potential collaboration for community support. On the organizational side, the team worked on database […]
This week, the FOP Trust field team balanced medical support with family assistance. Key highlights include: These actions reflect the Trust’s broader mission: not only providing medical guidance but also ensuring families feel supported in education, livelihood, and daily resilience. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
August brought several important medical updates for children living with Fibrodysplasia Ossificans Progressiva (FOP) across India and neighboring regions. With timely consultations, prescription adjustments, and ongoing follow-ups, families received much-needed clarity and relief. Anushka’s Case – Managing Severe Jaw Stiffness Eighteen-year-old Anushka from Rajasthan faced painful swelling and stiffness after a tooth extraction. She struggled […]
In August 2025, two young patients, Anushka from Rajasthan and Akshat from Jodhpur, showed the many faces of living with Fibrodysplasia Ossificans Progressiva (FOP). Their stories highlight how timely medical guidance and trust-supported care can make a difficult journey a little lighter. Anushka’s Strength Through Stiffness At just 18, Anushka has faced FOP’s challenges head-on. […]
Every year on August 15, India celebrates Independence Day — a reminder of the sacrifices that brought us freedom. For people living with Fibrodysplasia Ossificans Progressiva (FOP), independence means something deeply personal. It’s the ability to move safely, breathe well, and make informed choices about their own health. Freedom Through Knowledge Early diagnosis is the […]
The first week of August 2025 brought a mix of patient updates, flare-up management, and new awareness opportunities for the FOP Trust India team. Arzan’s father reported that his son is improving on the prescribed medication from Dr. Vrisha Madhuri, though the swelling has reduced only slightly. Devananda, on the other hand, is doing well […]
July 2025 was a landmark month for FOP Trust India—from expanding medical collaborations to supporting patient care across the country. Every phone call, consultation, and hospital visit added to the growing momentum of India’s FOP response. Strengthening Patient Care Throughout the month, FOP Trust facilitated over 15 consultations—both online and in person—with Dr. Vrisha Madhuri. […]
