This week, inspired by IFOPA’s global advocacy for early diagnosis, FOP Trust India strengthened its partnerships with several hospitals and pediatric specialists in Tamil Nadu and beyond. Official FOP Trust referral letters were submitted to: Each step ensures that when doctors see rare cases, they can connect instantly to FOP Trust and IFOPA’s learning resources […]
From October 17 to 25, Selva Kumar Vellore led a busy week of field operations for FOP Trust India: Takeaway: Every referral letter and meeting creates one more path to early diagnosis.Selva’s efforts this week reflect FOP Trust’s core value—connection through consistent action. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
This week, Selva Kumar focused on backend coordination and field support. He reviewed consultation records, verified contact details of patients awaiting appointments, and updated the FOP database with the latest medical information. Selva also finalized documentation of the Memorandum of Understanding (MoU) with the Lions Club of Vellore, which now carries the organization’s official seal. […]
Field officer Selva Kumar continued his rural outreach this October, traveling across Tamil Nadu to meet families, identify undiagnosed FOP cases, and connect them with expert medical care.His visits ensure that even patients in remote areas can access guidance from Amara Hospital and specialists like Dr. Vrisha Madhuri. Selva also worked closely with the Lions […]
The third week of September showcased the importance of timely consultations and consistent reviews in FOP management. On September 22, Shraya Pokhrel from Nepal had his first online consultation at Amara Hospital with Dr. Vrisha Madhuri. Despite technical challenges, the session was completed successfully. Dr. Madhuri prescribed medication, explained the FOP protocol, and answered his […]
The final week of September highlighted both direct patient care and organizational growth for FOP Trust India. On the patient front, Sanskriti from Uttar Pradesh had a follow-up consultation after her flare-up. Encouragingly, her range of motion showed improvement, and she was prescribed another course of medication. Meanwhile, Geetika from Andhra Pradesh reported better recovery […]
September was a month of both outreach and organization for FOP Trust India. At the community level, the Trust deepened its partnership with the Lions Club in Vellore. During a meeting on September 19, team members spoke about FOP, distributed pamphlets to club members, and later joined a welfare program to raise public awareness. These […]
The second week of September showed how much progress can be made when families, doctors, and partners come together for FOP care. From patient consultations to partnership discussions, every step reflected teamwork and commitment. Patient Consultations On September 8, Sanskriti Gupta had an online consultation at Amara Hospital after developing a new swelling in her […]
August brought several important medical updates for children living with Fibrodysplasia Ossificans Progressiva (FOP) across India and neighboring regions. With timely consultations, prescription adjustments, and ongoing follow-ups, families received much-needed clarity and relief. Anushka’s Case – Managing Severe Jaw Stiffness Eighteen-year-old Anushka from Rajasthan faced painful swelling and stiffness after a tooth extraction. She struggled […]
From January to July 2025, FOP Trust India has made remarkable strides in its mission to support families living with Fibrodysplasia Ossificans Progressiva (FOP). Here’s how their work is transforming lives across India: Medical Support: Over 100 patient consultations were coordinated, with many families receiving emergency guidance during flare-ups. Consultation fees, medications, and even genetic […]
