August brought several important medical updates for children living with Fibrodysplasia Ossificans Progressiva (FOP) across India and neighboring regions. With timely consultations, prescription adjustments, and ongoing follow-ups, families received much-needed clarity and relief. Anushka’s Case – Managing Severe Jaw Stiffness Eighteen-year-old Anushka from Rajasthan faced painful swelling and stiffness after a tooth extraction. She struggled […]
From January to July 2025, FOP Trust India has made remarkable strides in its mission to support families living with Fibrodysplasia Ossificans Progressiva (FOP). Here’s how their work is transforming lives across India: Medical Support: Over 100 patient consultations were coordinated, with many families receiving emergency guidance during flare-ups. Consultation fees, medications, and even genetic […]
In July 2025, FOP Trust India continued its mission of supporting families affected by Fibrodysplasia Ossificans Progressiva (FOP) by arranging several consultations and guiding families through essential care recommendations. Sanskriti’s Case – Uttar PradeshSanskriti, a 10-year-old from Uttar Pradesh, experienced a flare-up and was referred to Dr. Vrisha Madhuri at Amara Hospital for an online […]
On June 16, a visit was made to Amara Hospital to meet with Dr. Vrisha, who had just returned from leave. Updates were shared about recent home visits—highlighting Pranav’s successful post-surgery recovery and the mobility challenges faced by Kanish at home and in school. Details of the FOP awareness sessions conducted over the past two […]
Day One: Compassion in Action (June 9, 2025) The week began with patient check-ins. Ms. Asha Shetty was healing from jaw pain after using a gel prescribed by Dr. Rajesh. Samed Ali had recovered from a fever. Lashmamma, who completed a course of antibiotics, reported less gum pain. Meanwhile, Pranav, a recent surgery patient, was […]
In a powerful step toward building early recognition of rare diseases in India, FOP Trust India conducted a special awareness session with nursing faculty and students, equipping the next generation of healthcare professionals to identify and respond to Fibrodysplasia Ossificans Progressiva (FOP) with knowledge and sensitivity. 👩⚕️ Why Nurses Matter in Rare Disease Care Nurses […]
In today’s digital age, it’s easy to assume that everyone is just a tap away. But for many families living in India’s rural regions—especially those facing the challenges of a rare disease like Fibrodysplasia Ossificans Progressiva (FOP)—a letter in the mailbox can become their only connection to vital medical guidance and emotional support. ✉️ Personal […]
