Under Dr Vrisha Madhuri’s supervision, the week saw proactive online reviews:
- Kartik Pateria (Madhya Pradesh) — follow-up on joint-mobility score and updated medication.
- Vimala Joseph (Mumbai) — continued pamidronate therapy oversight coordinated with Dr Caroline (volunteer for Care Home).
- Archisman (West Bengal) — new flare-up assessed, with local pediatric contact identified for protocol orientation.
Payment for all consultations was facilitated by FOP Trust, ensuring no delay in patient access.
Takeaway: Expert guidance and continuity of care define the FOP Trust approach. Every week’s consultation is a reminder that consistent medical access transforms long-term outcomes.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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