When Archisman from West Bengal experienced a sudden FOP flare-up, his family immediately contacted FOP Trust. Within hours, he was connected to an online consultation at Amara Hospital, where Dr. Vrisha Madhuri reviewed his condition and advised the family to coordinate with a local pediatrician for emergency care.
Detailed instructions on the FOP protocol and pamidronate therapy were shared, ensuring safety and continuity of care close to home. With his parents’ proactive response and the Trust’s ongoing guidance, Archisman is now managing his symptoms with confidence and hope.
Empowered families make timely care possible—even from miles away.
Every story like Archisman’s reminds us that access and awareness can turn crisis into calm.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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