When Kartik Pateria from Madhya Pradesh began facing the challenges of Fibrodysplasia Ossificans Progressiva (FOP), his family turned to FOP Trust India for guidance.
In early October, the Trust facilitated an online consultation with Dr. Vrisha Madhuri at Amara Hospital, giving Kartik and his family renewed hope.
His medical details — from age at onset to current condition — were recorded, and his CAJIS score was assessed to track joint mobility.
Dr. Vrisha prescribed medication, shared the FOP care protocol, and advised a follow-up. With the consultation cost covered by FOP Trust, Kartik could focus entirely on his recovery.
Kartik’s journey shows the importance of structured care, timely consultation, and community support for families managing FOP.
Takeaway:
Hope grows when patients receive expert guidance and compassionate support.
Every patient story is a reminder of why FOP Trust exists — to connect families with care and confidence.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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