Each week, FOP Trust India works to ensure that children living with Fibrodysplasia Ossificans Progressiva (FOP) receive timely help and clear guidance. Between July 5 and 10, 2025, the team provided consultations, support, and practical solutions that eased fears and improved care for several families.
On July 5, Geetika’s father shared good news—his daughter was doing better after taking the prescribed medication. That same day, the Trust guided Kanish, who had just received his disability certificate, on applying for government benefits in Tamil Nadu.
On July 6, FOP Trust India arranged for Kanish’s consultation at Amara Hospital. The team coordinated with the hospital to cover the consultation fee.
July 7 marked Kanish’s in-person visit with Dr. Vrisha Madhuri. She examined him and advised using molded shoes with heel raise to support his walking. Also on that day, Khushal Singh had an online consultation. Dr. Vrisha addressed his father’s questions and advised continuing the current medication. She scheduled a follow-up for the next week.
Later that day, FOP Trust India visited Tamil Nadu State Level Children’s Hospital in Egmore, Chennai. They met the Director and department heads of Orthopedics and Genetics. The hospital agreed to refer children with suspected FOP cases—an important step toward faster diagnosis.
On July 10, two more children reached out during flare-ups. Ashik from Chennai had swelling in his elbow. After an assessment, Dr. Vrisha prescribed medication and set a review after five days. Devananda from Kerala also experienced a flare-up and received prompt care advice and prescriptions.
These updates show how fast action, expert advice, and steady support can make life better for children with FOP. Whether arranging a consultation or sharing a care tip, FOP Trust India remains focused on practical, family-centered care.
