Patient Story: Sanskriti’s Strength – A Young Voice of Hope from Uttar Pradesh
In a quiet town in Uttar Pradesh, 10-year-old Sanskriti Gupta is facing one of the world’s rarest diseases with quiet strength and a brave heart. Diagnosed with Fibrodysplasia Ossificans Progressiva (FOP), Sanskriti’s life changed in ways her family could never have imagined. But thanks to early action and strong support, she is receiving the care she needs—and offering hope to others.
In July 2025, Sanskriti’s parents reached out to FOP Trust India for help. She had started experiencing a flare-up—a painful symptom of FOP where muscles begin to turn into bone. The Trust quickly arranged an online consultation with Dr. Vrisha Madhuri at Amara Hospital, a leading expert in FOP care.
After evaluating Sanskriti, Dr. Madhuri offered a comprehensive care plan:
-Medication to control the flare-up
-Daily use of a spirometer to support lung health
-Singing exercises to improve breathing naturally
-Wearing a helmet to prevent head injuries—critical for children with limited arm movement
-A full guide to the FOP safety protocol
To ease the family’s financial burden, FOP Trust India covered the consultation cost. Despite their own challenges, their generosity reflected their deep appreciation and willingness to help others in the FOP community.
Sanskriti’s details were added to the national FOP database to ensure continued care and connection. With every small step—every follow-up, every shared update—her family grows stronger, and so does the support around them.
Sanskriti’s story is not just about a rare diagnosis. It is about early help, compassionate care, and the strength of a young girl who inspires everyone around her.
To learn more, visit: https://foptrust.org
For international resources, visit: https://www.ifopa.org
