In July 2025, FOP Trust India continued its mission of supporting families affected by Fibrodysplasia Ossificans Progressiva (FOP) by arranging several consultations and guiding families through essential care recommendations. Sanskriti’s Case – Uttar PradeshSanskriti, a 10-year-old from Uttar Pradesh, experienced a flare-up and was referred to Dr. Vrisha Madhuri at Amara Hospital for an online […]
Managing Fibrodysplasia Ossificans Progressiva (FOP) goes far beyond responding to flare-ups. Ongoing, consistent follow-up care is a critical element in maintaining patient health and minimizing complications. Recent updates from FOP Trust India show how essential this is. Patients like Devananda and Ashik weren’t just treated once—they received follow-up consultations with Dr. Vrisha Madhuri, had their […]
In the world of FOP care, early intervention during a flare-up can mean the difference between comfort and complication. This week, multiple families contacted FOP Trust India as their children experienced painful swellings—a classic sign of a flare-up. With quick coordination, the Trust arranged consultations with Dr. Vrisha Madhuri and ensured timely medication. Ashik and […]
The International FOP Association (IFOPA) continues to be a vital hub for individuals and families living with Fibrodysplasia Ossificans Progressiva (FOP). As a worldwide nonprofit, its mission focuses on empowering patients through education, research, and direct support. This week, we spotlight how IFOPA builds bridges between continents and clinics to serve the FOP community better. […]
In different corners of South India, two children—Ashik from Chennai and Devananda from Kerala—are walking a brave path shaped by Fibrodysplasia Ossificans Progressiva (FOP). Their journeys are different, but what binds them is the care, coordination, and unwavering support they’ve received from their families and FOP Trust India. Ashik’s Journey: Finding Relief in Time When […]
Over the past week, FOP Trust India continued its tireless efforts to ensure that every family affected by Fibrodysplasia Ossificans Progressiva (FOP) receives timely, expert care and the emotional support they need. From hospital visits to remote consultations, each day brought a mix of challenges, coordination, and hopeful outcomes. Hospital Collaboration in Chennai The week […]
For a rare disease like Fibrodysplasia Ossificans Progressiva (FOP), early recognition can mean the difference between careful management and avoidable harm. Because FOP is so rare—affecting roughly 1 in 2 million people—most general practitioners and pediatricians may never encounter a case during their careers. That’s why educating families and frontline health workers about the early […]
When thinking about FOP treatment, most people focus on flare-ups and bone growth. But oral health is just as important—especially since jaw stiffness and difficulty opening the mouth are common complications in patients with FOP. Routine dental procedures like extractions or deep cleanings can trigger flare-ups if not done carefully. That’s why patients must work […]
The International FOP Association (IFOPA) offers global support to FOP families by creating strong networks that transcend borders. From its roots in the United States, IFOPA has grown into a lifeline for families in over 60 countries, offering hope, education, and vital resources for those affected by Fibrodysplasia Ossificans Progressiva (FOP). IFOPA’s role in this […]
Every journey with Fibrodysplasia Ossificans Progressiva (FOP) is filled with quiet moments of courage—whether it’s a child leading her classroom, a family contributing despite hardship, or the community helping track down a lost contact. In July 2025, the FOP Trust India team encountered three such stories that reflect resilience, kindness, and deep commitment to care. […]
