Fibrodysplasia Ossificans Progressiva (FOP) remains one of the most misunderstood and misdiagnosed rare diseases. Because the condition is extremely rare, many healthcare professionals and community members confuse it with more common illnesses. Some mistake FOP for arthritis because of the joint stiffness and pain during flare-ups. Others assume it develops after trauma or infection and […]
Fibrodysplasia Ossificans Progressiva (FOP) remains one of the most misunderstood rare diseases. With only about 900 confirmed cases worldwide, public and even professional awareness is still alarmingly low. Misconceptions persist, leading to delays in diagnosis and sometimes irreversible harm. One common myth is that FOP is a form of arthritis or a post-injury complication. In […]
Every year on Rare Disease Day (Feb 28) and FOP Awareness Day (April 23), communities across the globe come together to spotlight the challenges faced by people living with rare conditions. For those living with Fibrodysplasia Ossificans Progressiva (FOP), these days are more than just symbolic—they are a call for recognition, resources, and respect. 🔍 […]
Fibrodysplasia Ossificans Progressiva (FOP) may be one of the rarest diseases in the world, but for the families affected, its impact is painfully real. Every flare-up brings uncertainty, every misdiagnosis delays critical care, and every untreated symptom adds to irreversible damage. Yet, amidst all this, a growing network of dedicated organizations like FOP Trust India […]
