The field team spent the week building partnerships and strengthening patient support systems. Meetings with Vellore Lions Club focused on organizing awareness programs, while discussions with Rotary Club officials explored future MoUs. Talks also began with the Reach India Foundation, signaling potential collaboration for community support. On the organizational side, the team worked on database […]
This week, the FOP Trust field team balanced medical support with family assistance. Key highlights include: These actions reflect the Trust’s broader mission: not only providing medical guidance but also ensuring families feel supported in education, livelihood, and daily resilience. To learn more, visit: https://foptrust.org/For international resources, visit: https://www.ifopa.org/
August brought several important medical updates for children living with Fibrodysplasia Ossificans Progressiva (FOP) across India and neighboring regions. With timely consultations, prescription adjustments, and ongoing follow-ups, families received much-needed clarity and relief. Anushka’s Case – Managing Severe Jaw Stiffness Eighteen-year-old Anushka from Rajasthan faced painful swelling and stiffness after a tooth extraction. She struggled […]
In August 2025, two young patients, Anushka from Rajasthan and Akshat from Jodhpur, showed the many faces of living with Fibrodysplasia Ossificans Progressiva (FOP). Their stories highlight how timely medical guidance and trust-supported care can make a difficult journey a little lighter. Anushka’s Strength Through Stiffness At just 18, Anushka has faced FOP’s challenges head-on. […]
Every year on August 15, India celebrates Independence Day — a reminder of the sacrifices that brought us freedom. For people living with Fibrodysplasia Ossificans Progressiva (FOP), independence means something deeply personal. It’s the ability to move safely, breathe well, and make informed choices about their own health. Freedom Through Knowledge Early diagnosis is the […]
The first week of August 2025 brought a mix of patient updates, flare-up management, and new awareness opportunities for the FOP Trust India team. Arzan’s father reported that his son is improving on the prescribed medication from Dr. Vrisha Madhuri, though the swelling has reduced only slightly. Devananda, on the other hand, is doing well […]
July 2025 was a landmark month for FOP Trust India—from expanding medical collaborations to supporting patient care across the country. Every phone call, consultation, and hospital visit added to the growing momentum of India’s FOP response. Strengthening Patient Care Throughout the month, FOP Trust facilitated over 15 consultations—both online and in person—with Dr. Vrisha Madhuri. […]
From January to July 2025, FOP Trust India has made remarkable strides in its mission to support families living with Fibrodysplasia Ossificans Progressiva (FOP). Here’s how their work is transforming lives across India: Medical Support: Over 100 patient consultations were coordinated, with many families receiving emergency guidance during flare-ups. Consultation fees, medications, and even genetic […]
In July 2025, FOP Trust India continued its mission of supporting families affected by Fibrodysplasia Ossificans Progressiva (FOP) by arranging several consultations and guiding families through essential care recommendations. Sanskriti’s Case – Uttar PradeshSanskriti, a 10-year-old from Uttar Pradesh, experienced a flare-up and was referred to Dr. Vrisha Madhuri at Amara Hospital for an online […]
Over the past week, FOP Trust India continued its tireless efforts to ensure that every family affected by Fibrodysplasia Ossificans Progressiva (FOP) receives timely, expert care and the emotional support they need. From hospital visits to remote consultations, each day brought a mix of challenges, coordination, and hopeful outcomes. Hospital Collaboration in Chennai The week […]
