Each week, FOP Trust India works to ensure that children living with Fibrodysplasia Ossificans Progressiva (FOP) receive timely help and clear guidance. Between July 5 and 10, 2025, the team provided consultations, support, and practical solutions that eased fears and improved care for several families. On July 5, Geetika’s father shared good news—his daughter was […]
From the hills of Andhra Pradesh to the city streets of Bangalore, June 2025 revealed the steady commitment of FOP Trust India to provide care, connection, and compassion to those affected by Fibrodysplasia Ossificans Progressiva (FOP). This month’s patient engagement stories highlight how consistent outreach, education, and financial support make a tangible difference—especially for families […]
Every week, families affected by Fibrodysplasia Ossificans Progressiva (FOP) reach out seeking answers, reassurance, and support. Behind every name is a journey of courage, uncertainty, and a desire for better care. This week’s updates reflect how consistent medical support, awareness, and timely intervention can make a significant difference in the lives of those living with […]
Advocating for a rare disease like FOP requires consistency, compassion, and creativity. In recent weeks, field teams have conducted a series of impactful outreach activities across southern India. From nursing colleges to hospital corridors, the message has been clear: awareness saves lives. One major milestone was the awareness session held at Pravagam AHS Nursing Training […]
On June 16, a visit was made to Amara Hospital to meet with Dr. Vrisha, who had just returned from leave. Updates were shared about recent home visits—highlighting Pranav’s successful post-surgery recovery and the mobility challenges faced by Kanish at home and in school. Details of the FOP awareness sessions conducted over the past two […]
A key step in improving care for FOP patients is ensuring that medical professionals know how to spot the signs early. FOP Trust India is taking a proactive approach by partnering with nursing and medical colleges across the country to raise rare disease awareness. 👩⚕️ Why This Matters Many FOP cases are misdiagnosed due to […]
In a country as vast and diverse as India, rare disease patients often go unnoticed, unheard, and unsupported. But for 84 families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and disabling genetic condition, FOP Trust India has become a pillar of hope, care, and action. Through its dedicated efforts, the trust is not just […]
