The International FOP Association (IFOPA) offers global support to FOP families by creating strong networks that transcend borders. From its roots in the United States, IFOPA has grown into a lifeline for families in over 60 countries, offering hope, education, and vital resources for those affected by Fibrodysplasia Ossificans Progressiva (FOP). IFOPA’s role in this […]
Despite growing global awareness, many people still misunderstand what the International FOP Association (IFOPA) does—and what it doesn’t. IFOPA is not a medical clinic, not a research lab, and not a government agency. Instead, it plays an essential role as an international connector, educator, and advocate for people living with Fibrodysplasia Ossificans Progressiva (FOP). What […]
In an increasingly digital world, IFOPA has adapted to meet the needs of the global FOP community by building accessible, technology-driven support tools. Through virtual education programs, translation services, and digital health guides, IFOPA empowers families and professionals to better understand and manage FOP, no matter where they live. One of its most useful digital […]
The International FOP Association (IFOPA) champions global FOP support through emotional, educational, and research-driven initiatives. It doesn’t just serve as a medical resource; it stands as a global connector. Families from over 60 countries have found guidance, friendship, and essential resources through this organization. From its humble origins in 1988, IFOPA has blossomed into an […]
The International FOP Association (IFOPA) was founded in 1988 by Jeannie Peeper, one of the first individuals diagnosed with Fibrodysplasia Ossificans Progressiva (FOP). From a small patient-led initiative, IFOPA has evolved into a global organization that champions FOP awareness, supports groundbreaking research, and empowers patients and families around the world. FOP is one of the […]
Introduction: What is IFOPA? The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a global nonprofit dedicated to supporting individuals and families affected by Fibrodysplasia Ossificans Progressiva (FOP)—a rare and disabling genetic condition. Every week, IFOPA carries out vital work in areas such as support, research, education, and awareness. Here’s a roundup of what IFOPA did […]
Fibrodysplasia Ossificans Progressiva (FOP) is one of the world’s rarest and most disabling diseases—but thanks to committed partnerships like the one between FOP Trust India and the International FOP Association (IFOPA), the future looks more connected, informed, and hopeful than ever before. 🌍 A Global Condition, A Unified Response FOP knows no borders. While it […]
