Managing Fibrodysplasia Ossificans Progressiva (FOP) goes far beyond responding to flare-ups. Ongoing, consistent follow-up care is a critical element in maintaining patient health and minimizing complications. Recent updates from FOP Trust India show how essential this is. Patients like Devananda and Ashik weren’t just treated once—they received follow-up consultations with Dr. Vrisha Madhuri, had their […]
In the world of FOP care, early intervention during a flare-up can mean the difference between comfort and complication. This week, multiple families contacted FOP Trust India as their children experienced painful swellings—a classic sign of a flare-up. With quick coordination, the Trust arranged consultations with Dr. Vrisha Madhuri and ensured timely medication. Ashik and […]
When thinking about FOP treatment, most people focus on flare-ups and bone growth. But oral health is just as important—especially since jaw stiffness and difficulty opening the mouth are common complications in patients with FOP. Routine dental procedures like extractions or deep cleanings can trigger flare-ups if not done carefully. That’s why patients must work […]
While mainstream medicine continues to develop targeted therapies for FOP, many patients explore alternative approaches to ease daily discomfort and improve quality of life. These therapies may not alter disease progression, but they can offer relief, mobility support, and emotional wellness. Some families turn to physiotherapy techniques designed to increase comfort—though these must be done […]
Scientific innovation continues to offer new hope to people living with FOP. In 2025, several biotech companies are testing promising therapies that could slow or even prevent heterotopic ossification (HO). Recent focus has shifted toward precision medicine. Instead of general treatments, researchers are now working on therapies that specifically target the ACVR1 gene mutation responsible […]
The road from drug discovery to treatment can take years, but for the FOP community, every step forward counts. In 2025, several promising medications continue to advance through clinical trials. These drugs, aimed at slowing or halting heterotopic ossification, are being developed and tested with active input from the global FOP community. Saracatinib, now in […]
FOP research is advancing steadily, bringing hope to patients and families worldwide. In 2025, one of the biggest developments is the Phase 2 trial of the STOP-FOP study, which focuses on the drug saracatinib. Originally developed for other conditions, saracatinib has shown promise in reducing flare-ups and slowing abnormal bone growth in FOP. Another promising […]
Treatment and research for Fibrodysplasia Ossificans Progressiva (FOP) are always changing, and 2025 will bring exciting new advancements and new hope. Even the slightest advancement in clinical trials and medication development can significantly improve the quality of life for individuals and their families afflicted by this extremely uncommon illness. The STOP-FOP trial’s entry into Phase […]
For families dealing with Fibrodysplasia Ossificans Progressiva (FOP) in India, the search for effective treatment often feels like walking an endless road. But that road now leads to hope—clinical trials for FOP are underway globally, including efforts supported by Indian doctors and researchers. Here’s what families in India need to know. 🧪 What Are Clinical […]
