For Shraya Pokhrel from Nepal, the first online consultation with Dr. Vrisha Madhuri was a turning point. Network issues and scheduling challenges could not stop the session, where Dr. Madhuri assessed his condition, prescribed medication, and explained the FOP protocol. For his father, the consultation brought much-needed clarity. His doubts about the disease and treatment […]
For families living with FOP, the first consultation often feels like the most important step. This was true for Shraya Pokhrel, a child from Nepal, who recently had his first online consultation with Dr. Vrisha Madhuri at Amara Hospital. Despite challenges like network issues, a packed hospital schedule, and the complexity of Shraya’s symptoms, the […]
Sivaji, a young man from Andhra Pradesh, has been navigating the uncertainty of a suspected FOP diagnosis. His case reflects both the challenges of rare disease detection and the power of persistence in seeking answers. After developing symptoms that raised concerns, Sivaji underwent tests and X-rays. Unfortunately, his earlier reports did not reveal a clear […]
At just 10 years old, Sanskriti Gupta from Uttar Pradesh is showing remarkable strength as she learns to live with Fibrodysplasia Ossificans Progressiva (FOP). Her journey reflects the resilience of many children and families navigating the daily challenges of this rare condition. A New Flare-Up On September 8, 2025, Sanskriti developed a painful swelling in […]
Young Varsa from Madurai has been bravely navigating her FOP journey. Recently, she faced swelling in her neck, which caused pain and discomfort. Her grandfather, a strong advocate for her care, reported the situation to FOP Trust. With support from Dr. Vrisha Madhuri, Varsa received medication that eased her pain. While the swelling has not […]
For Mayashree from Manipur, every treatment is a step forward in her fight against FOP. Earlier this month, she received her second dose of Pamidronate at the Regional Institute of Medical Sciences, Imphal. Unlike her first experience, this session went smoothly without complications. Her father expressed deep gratitude to Dr. Vrisha Madhuri, the local medical […]
Ashik, a young boy from Chennai, faced one of his toughest moments in mid-August. A painful flare-up with skin rashes brought him to the emergency department of Amara Hospital. Under the care of Dr. Vrisha Madhuri, he received immediate treatment and recovered well enough to return home the next day. A few days later, Ashik […]
The first week of August 2025 brought a mix of patient updates, flare-up management, and new awareness opportunities for the FOP Trust India team. Arzan’s father reported that his son is improving on the prescribed medication from Dr. Vrisha Madhuri, though the swelling has reduced only slightly. Devananda, on the other hand, is doing well […]
Pranav, a young boy from Salem, Tamil Nadu, has been living with Fibrodysplasia Ossificans Progressiva (FOP)—a condition that turns soft tissue into bone, limiting movement and posing severe health risks. In recent months, his journey took a critical turn when he experienced multiple falls that resulted in a head injury, leading to neurosurgery. By July […]
Patient Story: Sanskriti’s Strength – A Young Voice of Hope from Uttar Pradesh In a quiet town in Uttar Pradesh, 10-year-old Sanskriti Gupta is facing one of the world’s rarest diseases with quiet strength and a brave heart. Diagnosed with Fibrodysplasia Ossificans Progressiva (FOP), Sanskriti’s life changed in ways her family could never have imagined. […]
