In different corners of South India, two children—Ashik from Chennai and Devananda from Kerala—are walking a brave path shaped by Fibrodysplasia Ossificans Progressiva (FOP). Their journeys are different, but what binds them is the care, coordination, and unwavering support they’ve received from their families and FOP Trust India. Ashik’s Journey: Finding Relief in Time When […]
Every journey with Fibrodysplasia Ossificans Progressiva (FOP) is filled with quiet moments of courage—whether it’s a child leading her classroom, a family contributing despite hardship, or the community helping track down a lost contact. In July 2025, the FOP Trust India team encountered three such stories that reflect resilience, kindness, and deep commitment to care. […]
In a quiet village in Mayiladuthurai district, Tamil Nadu, lives 10-year-old Pragdiswaran, a bright boy with a powerful story of strength, struggle, and hope. His life changed at just 30 months old, when a red patch on his neck led to a local hospital referral. Suspecting cancer, doctors in Thanjavur performed a biopsy and administered […]
In a modest home in Bangladesh, a two-and-a-half-year-old boy named Waziuzzaman Muhammad has begun a journey few could imagine. As the firstborn child of Mr. Md Helal and Mrs. Nahida Khamom, Waziuzzaman seemed like any other healthy toddler. But in May 2023, a sudden and unexplained lump on the back of his neck changed everything. […]
A Brave Heart from Chengannur In the quiet town of Chengannur in Kerala’s Alappuzha District lives 10-year-old Devanda. She shows incredible courage while facing Fibrodysplasia Ossificans Progressiva (FOP), a rare and challenging genetic condition. Her story highlights the power of early diagnosis, strong community support, and her family’s unwavering care. Diagnosis That Changed Her Life […]
In the small village of Vishamangalam in Tamil Nadu, a 14-year-old boy named Bharath faces one of the world’s rarest diseases—Fibrodysplasia Ossificans Progressiva (FOP). But while his condition turns soft tissue into bone, what remains unbreakable is the spirit of a loving mother, a resilient child, and a hope for a better tomorrow. The First […]
In the quiet village of Kuttalam, nestled in Tamil Nadu’s Mayiladuthurai district, lives a ten-year-old boy named Pragdiswaran. His story is one of resilience, hope, and the unseen struggles faced by those living with Fibrodysplasia Ossificans Progressiva (FOP)—a rare disease that turns muscle into bone. At just two and a half years old, Pragdiswaran developed […]
