For Mayashree from Manipur, every treatment is a step forward in her fight against FOP. Earlier this month, she received her second dose of Pamidronate at the Regional Institute of Medical Sciences, Imphal. Unlike her first experience, this session went smoothly without complications.
Her father expressed deep gratitude to Dr. Vrisha Madhuri, the local medical team, and the FOP Trust for their coordinated care. Through clear guidance and support, the family feels less alone and more hopeful.
Mayashree’s story reflects the importance of persistence, follow-up care, and community support in managing a lifelong condition like FOP.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
