Despite growing awareness, myths around FOP still cause harm. Some believe it is arthritis, while others think it develops after injuries. In truth, FOP is a genetic condition caused by a mutation in the ACVR1 gene, leading soft tissues to transform into bone.
These misunderstandings often push families toward dangerous treatments like biopsies or surgeries, which worsen the condition. That is why raising awareness among general doctors, dentists, and physiotherapists is crucial.
FOP Trust India works to spread accurate information through doctor outreach, awareness programs, and family education. By breaking myths, the Trust ensures families make safe, informed choices from the start.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
