Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medical science. But amidst the uncertainty it brings, there stands a powerful global force dedicated to advocacy, research, and support—the International FOP Association (IFOPA). Since its inception, IFOPA has played a crucial role in uniting the global FOP community, […]
In a country as vast and diverse as India, rare disease patients often go unnoticed, unheard, and unsupported. But for 84 families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and disabling genetic condition, FOP Trust India has become a pillar of hope, care, and action. Through its dedicated efforts, the trust is not just […]
FOP Trust India is a lifeline for individuals and families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and debilitating genetic condition. Every day, the trust works behind the scenes to offer unwavering support to patients across India and neighboring countries, combining compassion with commitment in ways that are truly remarkable. At the heart of […]
Go behind the scenes of this year’s Drug Development Forum When Dan Perrien attended his first FOP Drug Development Forum (DDF), he met two young children with fibrodysplasia ossificans progressiva (FOP). He watched them run and play like any other children would — while the adults in the room were on high alert to make […]
Progressively maintain extensive infomediaries via extensible niches. Dramatically disseminate standardized metrics after resource-leveling processes. Objectively pursue diverse catalysts for change for interoperable meta-services.
Globally incubate standards compliant channels before scalable benefits. Quickly disseminate superior deliverables whereas web-enabled applications. Quickly drive clicks-and-mortar catalysts for change before vertical architectures.
