In the quiet village of Kuttalam, nestled in Tamil Nadu’s Mayiladuthurai district, lives a ten-year-old boy named Pragdiswaran. His story is one of resilience, hope, and the unseen struggles faced by those living with Fibrodysplasia Ossificans Progressiva (FOP)—a rare disease that turns muscle into bone. At just two and a half years old, Pragdiswaran developed […]
For most people, Fibrodysplasia Ossificans Progressiva (FOP) is an unfamiliar word—complex, obscure, and distant. But for families living with it, FOP is a daily reality that affects every aspect of life. Thankfully, community-led efforts, international collaboration, and generous individuals are changing what it means to live with this condition. At the heart of this change […]
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