Day One: Compassion in Action (June 9, 2025) The week began with patient check-ins. Ms. Asha Shetty was healing from jaw pain after using a gel prescribed by Dr. Rajesh. Samed Ali had recovered from a fever. Lashmamma, who completed a course of antibiotics, reported less gum pain. Meanwhile, Pranav, a recent surgery patient, was […]
Fibrodysplasia Ossificans Progressiva (FOP) may be one of the rarest diseases in the world, but for the families affected, its impact is painfully real. Every flare-up brings uncertainty, every misdiagnosis delays critical care, and every untreated symptom adds to irreversible damage. Yet, amidst all this, a growing network of dedicated organizations like FOP Trust India […]
In a country as vast and diverse as India, rare disease patients often go unnoticed, unheard, and unsupported. But for 84 families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and disabling genetic condition, FOP Trust India has become a pillar of hope, care, and action. Through its dedicated efforts, the trust is not just […]
FOP Trust India is a lifeline for individuals and families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and debilitating genetic condition. Every day, the trust works behind the scenes to offer unwavering support to patients across India and neighboring countries, combining compassion with commitment in ways that are truly remarkable. At the heart of […]
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