All posts tagged: Startup

Fibrodysplasia ossificans progressiva

Meet Pragdiswaran — A Brave Fighter, A Small Village, and a Big Need for Support

In the quiet village of Kuttalam, nestled in Tamil Nadu’s Mayiladuthurai district, lives a ten-year-old boy named Pragdiswaran. His story is one of resilience, hope, and the unseen struggles faced by those living with Fibrodysplasia Ossificans Progressiva (FOP)—a rare disease that turns muscle into bone. At just two and a half years old, Pragdiswaran developed […]

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A Beacon of Hope: How FOP Trust India Supports the Rare Disease Community

FOP Trust India is a lifeline for individuals and families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and debilitating genetic condition. Every day, the trust works behind the scenes to offer unwavering support to patients across India and neighboring countries, combining compassion with commitment in ways that are truly remarkable. At the heart of […]

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