One of the most powerful lessons of August was the importance of following medical protocols. Families like Helal’s in Bangladesh and Mayashree’s in Manipur showed how local doctors can safely deliver therapies when guided by expert instructions.
Protocols prevent risky decisions like unnecessary surgeries or biopsies. They also ensure flare-ups are managed quickly, reducing pain and long-term complications.
Through WhatsApp groups, newsletters, and direct consultations, FOP Trust India continues to share updated medical guidance with families and doctors. This focus on education ensures that knowledge becomes a shield—protecting patients and empowering caregivers.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
