In today’s digital age, it’s easy to assume that everyone is just a tap away. But for many families living in India’s rural regions—especially those facing the challenges of a rare disease like Fibrodysplasia Ossificans Progressiva (FOP)—a letter in the mailbox can become their only connection to vital medical guidance and emotional support.
✉️ Personal Letters, Real Impact
FOP Trust India has launched a heartfelt offline outreach program to connect with every known FOP-affected family across the country. The team has sent hundreds of multilingual information letters by post, sharing the Trust’s mission, available resources, and medical guidelines for managing FOP.
Many of these families live in areas with limited or no access to the internet. For them, these letters are not just messages—they are lifelines.
One parent shared: “It felt like someone finally knew what we were going through.”
🛠️ How the Outreach Works
- Tracing missing addresses through phone calls and WhatsApp
- Translating material into regional languages using tools like Google Translate
- Following up with phone calls to confirm the letters were received and understood
Each letter is personal, compassionate, and tailored to the needs of each family—offering comfort, clarity, and connection.
🧡 You Can Help
You can support this effort. Just ₹25 can fund the printing and postage of a letter that may change a family’s journey forever. Donate here to help reach more families in need.
To learn more, visit our FOP awareness programs and latest research updates.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
