Oral Health in FOP: A Vital Yet Overlooked Part of Care

When thinking about FOP treatment, most people focus on flare-ups and bone growth. But oral health is just as important—especially since jaw stiffness and difficulty opening the mouth are common complications in patients with FOP.

Routine dental procedures like extractions or deep cleanings can trigger flare-ups if not done carefully. That’s why patients must work with dentists who understand the risks. Preventive care becomes critical. Regular brushing, gentle flossing, and fluoride use can help prevent problems that would require invasive treatment.

Dentists are advised to avoid injections in the jaw or neck region and must consult with the patient’s FOP specialist before scheduling any dental procedure. Patients are encouraged to keep a “dental emergency protocol” on hand—outlining medications and steps to follow if an issue arises.

New studies have also highlighted the importance of jaw exercises, done carefully, to maintain mouth mobility. These should only be done under supervision, but they offer hope in managing one of FOP’s more silent yet painful limitations.

Good oral care doesn’t just protect the mouth—it protects the body from additional complications and helps improve overall quality of life.

To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/