This week showed the importance of both immediate treatment and long-term planning.
On September 15, Sivaji from Andhra Pradesh was reviewed after new flare-up concerns. His earlier tests had not revealed clear results, but new X-rays suggested features of FOP. To ensure accuracy, Dr. Vrisha Madhuri recommended further testing and sought additional input from a U.S. expert. This global consultation reflects the commitment to safe, precise diagnosis.
Meanwhile, Ashik from Chennai continues to do well following pamidronate therapy, a sign of steady recovery. Geetika from Andhra Pradesh, who sustained a forehead injury from a fall, received care from a local doctor, with Dr. Vrisha advising on next steps.
These updates emphasize that while medications manage flare-ups, protocols and preventive tools like helmets and spirometers remain essential for long-term care. Together, treatment and prevention reduce risks and give families confidence in daily decision-making.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
