Awareness in Action: Partnerships and Prevention

Awareness is more than information—it is action that protects lives. This week, partnerships and patient stories highlighted how awareness shapes better care.

Through discussions with the Lions Club Vellore, FOP Trust India expanded its reach into community programs that will run through 2025–26. These partnerships ensure that schools, hospitals, and families gain exposure to safe practices, like avoiding biopsies and managing flare-ups promptly.

At the family level, patients like Geetika and Sanskriti received guidance not just on medication, but also on preventive steps like spirometer use, helmet safety, and daily monitoring. This blend of awareness and action makes care sustainable in the long run.

Looking ahead, family voices are becoming powerful advocates. Arzaan’s father has already suggested organizing awareness during World Disability Day 2025 in Delhi—a reminder that awareness spreads strongest when families lead.

To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/