Families living with FOP often struggle with uncertainty, especially during flare-ups. The International FOP Association (IFOPA) bridges this gap by offering global support tools that guide safe decisions.
From emergency medical cards to step-by-step flare-up protocols, IFOPA resources are designed to prevent harmful actions like biopsies or nerve blocks. In September, families like Shraya’s from Nepal benefitted from these tools, using them to share accurate guidance with local doctors.
Beyond resources, IFOPA connects families through international webinars, family networks, and online communities, ensuring no family feels isolated. By combining knowledge with connection, IFOPA gives families both clarity and confidence.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
