FOP Trust India is a lifeline for individuals and families affected by Fibrodysplasia Ossificans Progressiva (FOP), a rare and debilitating genetic condition. Every day, the trust works behind the scenes to offer unwavering support to patients across India and neighboring countries, combining compassion with commitment in ways that are truly remarkable. At the heart of […]
All posts by FOP Trust
“The horizon for FOP is bright.”
Go behind the scenes of this year’s Drug Development Forum When Dan Perrien attended his first FOP Drug Development Forum (DDF), he met two young children with fibrodysplasia ossificans progressiva (FOP). He watched them run and play like any other children would — while the adults in the room were on high alert to make […]
Do you have what it takes to be an Underpuppy?
Meet 12-year-old Raina When Raina and her friends created a club called “The Underpuppies,” they decided on just one requirement: You have to be genuinely kind to join. To enforce that requirement, they developed a test. The current Underpuppies stage a situation where the prospective member has to help someone in need or be willing […]
It Was Life-changing!
After falling this spring, Jordyn’s arms locked up more. At night, her arms wouldn’t touch the bed when she laid flat on her back, and she could no longer sleep on her side because of the pain the pressure put on her arms. None of the pillows or towels she tried helped her find a […]
Optimized Genome-Editing Method Opens The Door To More Effective Treatment Of Genetic Diseases
CRISPR-Cas9 is widely used to edit the genome by studying genes of interest and modifying disease-associated genes. However, this process is associated with side effects including unwanted mutations and toxicity. Therefore, a new technology that reduces these side effects is needed to improve its usefulness in industry and medicine. Now, researchers at Kyushu University in […]
Fibrodysplasia Ossificans Progressiva
DISEASE OVERVIEW Fibrodysplasia ossificans progressiva (FOP) is an extremely rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present (heterotopic ossification), such as the ligaments, tendons and skeletal muscles. Specifically, this disorder causes the body’s skeletal muscles and soft connective tissues to […]
Fibrodysplasia Ossificans Progressiva Pipeline Report, 2024 Updates : In-Depth Analysis Into the Clinical Trials, Latest FDA, EMA, and PMDA Approvals, Emerging Drugs, Growth Prospects and Companies
The Fibrodysplasia Ossificans Progressiva Pipeline report embraces in-depth commercial and clinical assessment of the pipeline products from the pre-clinical developmental phase to the marketed phase. The report also covers a detailed description of the drug, including the mechanism of action of the drug, clinical studies, NDA approvals (if any), and product development activities comprising the […]
Successful Preimplantation Genetic Testing for Fibrodysplasia Ossificans Progressiva: a Case Report
Purpose of the study Fibrodysplasia ossificans progressiva (FOP) is a rare autosomal dominant condition that leads to significant disability and morbidity, characterised by the formation of heterotopic hard tissues within connective tissues. The condition has an incidence of approximately one per two million people worldwide. There is no known single effective treatment available for FOP. […]
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