Beyond Awareness Days – Building Year-Round Understanding of Rare Diseases

The week concluded with an impactful FOP Awareness Program organized with the Vellore Lions Club.
Community members, youth groups, and healthcare professionals joined to learn about early diagnosis, FOP care protocols, and the emotional needs of rare disease patients.

Planning for World Polio Day awareness drives was also finalized, supported by an officially sealed MoU with the Lions Club.
This ongoing collaboration ensures that awareness doesn’t end with a single event — it becomes part of community health conversations year-round.

Takeaway:
Lasting awareness comes from continuous education and partnership.
With every awareness drive, FOP Trust and its partners spread knowledge, empathy, and lasting change.

To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/