Building Awareness Through Hospital Referrals and Medical Collaboration

This month brought steady progress across consultations, diagnoses, and treatment coordination. From Shraya in Nepal to Ashik in Chennai, timely follow-ups ensured that flare-ups were managed quickly and safely.

Dr. Vrisha Madhuri emphasized preventive care alongside treatment—urging the use of helmets, spirometry, and regular reviews to track mobility and lung health. Pamidronate therapy, prescribed in multiple states, continued to reduce inflammation and improve comfort for children under her supervision.

Research collaboration also advanced, with updated genetic analyses helping identify rare mutation types, including Sivaji’s case from Andhra Pradesh. These studies add valuable data for the Indian FOP database and future gene-based interventions.

Each case this month reinforces a vital lesson: when detection is early and coordination strong, outcomes improve dramatically.

To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/