The International FOP Association (IFOPA) was founded in 1988 by Jeannie Peeper, one of the first individuals diagnosed with Fibrodysplasia Ossificans Progressiva (FOP). From a small patient-led initiative, IFOPA has evolved into a global organization that champions FOP awareness, supports groundbreaking research, and empowers patients and families around the world. FOP is one of the […]
Introduction: What is IFOPA? The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a global nonprofit dedicated to supporting individuals and families affected by Fibrodysplasia Ossificans Progressiva (FOP)—a rare and disabling genetic condition. Every week, IFOPA carries out vital work in areas such as support, research, education, and awareness. Here’s a roundup of what IFOPA did […]
Fibrodysplasia Ossificans Progressiva (FOP) is one of the world’s rarest and most disabling diseases—but thanks to committed partnerships like the one between FOP Trust India and the International FOP Association (IFOPA), the future looks more connected, informed, and hopeful than ever before. 🌍 A Global Condition, A Unified Response FOP knows no borders. While it […]
