Protocols are more than just instructions—they are the compass that guides families through FOP’s uncertainty. Written care plans, shared by FOP Trust and Dr. Vrisha Madhuri, help families make quick, confident decisions during flare-ups and emergencies.
In october, several parents expressed gratitude for having these clear guidelines. Whether managing pain, preventing injury, or coordinating with local doctors, they knew exactly what steps to take.
Awareness grows stronger when families are informed. Each printed protocol, video guide, or shared WhatsApp message brings clarity and confidence—turning fear into calm, and confusion into care.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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