Every treatment step this week — whether preventive or reactive — aligned closely with IFOPA’s international clinical care guidelines, especially regarding:
🔹 Timing of pamidronate post-flare
🔹 Secondary pamidronate cycle for preventative care
🔹 Monitoring calcium levels after infusion
🔹 Review timeline after flare-up medication
🔹 Educating local doctors for safe administration instead of risky general treatment
The outcomes of this week reflect the strength of the IFOPA-guided system:
⭐ children doing better
⭐ families more confident
⭐ doctors across India becoming more aware of correct FOP management
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
Recent Posts
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A Week of Preventive Treatment and Emergency Flare-Up Management -
Mayeshree’s Journey — Staying Ahead of Future Flare-Ups -
Coordinating Hospitals and Doctors Across India for Seamless FOP Care -
FOP Awareness Expands — Training Program Held for Police Personnel -
Global Guidelines Continue to Shape Local Treatment Decisions