The International FOP Association (IFOPA) continues to serve as a lifeline for families worldwide. Its global support network provides practical tools, emergency guidelines, and educational resources that families can trust in moments of uncertainty.
In September, families like those of Akshat from Rajasthan and Helal from Bangladesh relied on IFOPA’s flare-up protocols to guide safe treatment. By sharing standardized instructions, IFOPA ensures that even local doctors unfamiliar with FOP can act confidently and avoid harmful interventions like biopsies or nerve blocks.
Beyond resources, IFOPA connects families through webinars, community groups, and international collaborations. This global reach allows patients in India to feel part of a wider community that understands their challenges and shares in their victories.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
