The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) continues to be a lifeline for families navigating this rare and complex condition. Their online library offers practical, patient-tested resources—covering everything from flare-up management to oral care tips—that help families feel more prepared for everyday challenges.
In August, several Indian families benefited from IFOPA’s translated emergency care cards and home safety checklists. These tools ensured that parents could act quickly when new symptoms appeared and share accurate information with local doctors.
FOP Trust India regularly connects newly diagnosed patients with IFOPA’s learning hub, allowing them to access credible, research-backed advice. For many, this bridge between global knowledge and local needs has reduced uncertainty and prevented harmful treatments.
By combining IFOPA’s global reach with the Trust’s on-ground network, families receive timely, tailored guidance—proving that knowledge is a form of care in itself.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
