The International FOP Association (IFOPA) continues to strengthen global collaboration through partnerships with research centers and rare disease networks.
These initiatives are helping accelerate clinical trials, improve data accuracy, and ensure better representation from developing countries like India.
Through shared registries and virtual consultations, IFOPA enables doctors to access the latest FOP Treatment Guidelines — ensuring families receive consistent care worldwide.
In India, this collaborative spirit is mirrored by FOP Trust India and Amara Hospital, where ongoing consultations with Dr. Vrisha Madhuri contribute valuable insights to the global FOP data pool.
Takeaway:
Every partnership expands access, accelerates research, and strengthens hope for FOP families.
At FOP Trust India, we proudly echo IFOPA’s global mission — turning connections into care for every patient.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
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