Flare-Ups Continue to Teach Us
August brought new lessons on managing flare-ups in FOP patients across India. Children like Ashik from Tamil Nadu and Durga Bavani from Andhra Pradesh experienced painful swellings. With timely support from FOP Trust, both received quick online consultations with Dr. Vrisha Madhuri. She prescribed targeted medication and scheduled follow-ups, ensuring the flare-ups were brought under control before they worsened. These cases reinforced the importance of fast intervention within the first 24 hours of symptoms.
Individualized Care Plans
Each patient’s experience highlighted the need for tailored treatment. For instance, Mayeshree from Manipur was advised to continue Pamidronate therapy at her local hospital. To make this process safe, Dr. Madhuri shared precise dosage instructions with her family and medical team. This collaborative approach ensures that even distant patients receive care aligned with best practices.
Reducing Risk Through Preparedness
Doctors emphasized that medications should always be kept ready at home, with families trained on when and how to use them. Parents were also reminded that flare-up management goes hand in hand with long-term strategies like respiratory exercises, protective helmets, and careful mobility practices.
The Bigger Picture
While medication remains the cornerstone of flare-up control, the larger goal is to minimize risk, prevent complications, and help patients live more comfortably. Every case managed in August added to the community’s growing knowledge bank, creating a stronger foundation for future care.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
