The first week of September brought important lessons about managing FOP flare-ups with safe, evidence-based care.
- Ashik from Chennai consulted a rheumatologist after Pamid therapy. While medication was confirmed as safe, Dr. Vrisha Madhuri advised against a nerve block procedure, reminding us of the importance of FOP-specific protocols.
- Varsa from Madurai reported relief from pain after prescribed medication, but swelling persisted. Her family was asked to share photos for further evaluation.
- Kos from Assam received Pamid therapy locally. While he improved, movement restriction remained, showing the need for long-term follow-up.
- Samad from Jharkhand and Devananda from Kerala are recovering well with their current treatment plans.
Every consultation reinforces that managing FOP is not just about medication—it’s about making the right decisions at the right time, guided by expertise and trust.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
Recent Posts
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Building Awareness Together: Partnerships and Community Action in September -
IFOPA Global Support: Tools That Connect Families Everywhere -
Sanskriti’s Strength: Facing Flare-Ups with Courage -
Partnerships, Planning, and Patient Care: A Week of Progress in September -
From Confusion to Clarity: How Protocols Empower Families in Daily FOP Care