For families living with FOP, the first consultation often feels like the most important step. This was true for Shraya Pokhrel, a child from Nepal, who recently had his first online consultation with Dr. Vrisha Madhuri at Amara Hospital.
Despite challenges like network issues, a packed hospital schedule, and the complexity of Shraya’s symptoms, the consultation went ahead. Dr. Vrisha carefully assessed Shraya’s condition, prescribed the necessary medication, and explained the FOP protocol in detail. For his father, this was a moment of reassurance. His doubts about his child’s treatment and long-term care were answered clearly, giving the family both clarity and direction.
The very next day, FOP Trust ensured that a copy of the protocol was sent to Shraya’s father, so he could share it with local doctors and keep it handy for emergencies. This step ensures that Shraya’s care doesn’t stop at one consultation—it continues at home with confidence and informed decisions.
Shraya’s story is not just about a first consultation; it is about the power of guidance. For families facing uncertainty, timely advice transforms confusion into clarity and fear into preparedness. His case also highlights how cross-border families benefit from FOP Trust India’s support, ensuring no child is left without expert care.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
