The International FOP Association (IFOPA) continues to guide global rare disease communities with practical, patient-centered tools. In India, these resources have become part of daily care—from flare-up protocols to emergency cards and self-help guides.
Families like Shraya’s in Nepal and Akshat’s in Rajasthan used IFOPA’s translated guidelines this month to manage flare-ups safely. These resources helped avoid risky medical interventions and ensured early medication, which made recovery smoother.
The Trust continues to direct new families to IFOPA’s online materials so that even those in remote areas can access reliable medical knowledge and connect with global experts. This growing bridge between international research and Indian field practice strengthens every family’s confidence in managing FOP.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
Recent Posts
-
Connecting Care — How IFOPA’s Global Vision Inspires FOP Trust’s Local Outreach -
Swift Medical Support for New Flare-Ups Across India -
Ivansh’s Recovery — Hope and Healing Through Expert Guidance -
Hospital Visits, Referrals, and Regional Expansion — Selva Kumar’s Update -
Building Awareness Through Hospital Referrals and Medical Collaboration