Young Varsa from Madurai has been bravely navigating her FOP journey. Recently, she faced swelling in her neck, which caused pain and discomfort. Her grandfather, a strong advocate for her care, reported the situation to FOP Trust.
With support from Dr. Vrisha Madhuri, Varsa received medication that eased her pain. While the swelling has not fully reduced, further advice is being sought through photo reviews. Her family remains committed to timely follow-ups, showing how perseverance and trust can ease even the toughest challenges.
Varsa’s story highlights the role of families as frontline caregivers and the importance of medical guidance at every step.
To learn more, visit: https://foptrust.org/
For international resources, visit: https://www.ifopa.org/
